What does Quality of Life mean to you? We can all agree that Quality of Life means different things to different people. In my professional area of Clinical Research-Clinical Trials Management, I immediately think about Patient Reported-Outcomes (PRO) which is the health related quality of life – personal health status of the individual. Patient Reported-Outcomes has taken center stage in the last several years particularly because it is useful for healthcare providers and payers as they decide with patients on prescribing of treatments-therapy and pay for the treatment. Patient Reported-Outcome results are now used by regulatory authorities as a guide for medical product development. In essence, the Patient Reported-Outcome (PRO) takes a patient-centric approach to quality of life, it is Incorporating the patient’s perspective into drug development. Of course, the design of the PRO instrument, the administration of the PRO instrument including the data collection, evaluation, validity and reliability are areas that can be discussed in detail by PRO experts.
In the last several years there has been a lot of discussion regarding one’s passion, for example, your professional work, your volunteer work, your healthcare-fitness, and work-life balance (family personal) time. Many believe paying attention to your passion is your quality of life. My passion is the management of Clinical Trials and my focus is on volunteering; I think both define me. However, work-life balance, although it’s a challenge for me to accomplish, it is important to my well-being and is a part of my quality of life. In my opinion, developing your passion-quality of life is through life experiences and really is not an attitude/mind-set you are born with that needs to be awakened or something you develop overnight. That being the case, again I ask, what does quality of life mean to you? There are plenty of books titled Quality of Life that provide you with the perspective of economists and philosophers. Forbes had an article entitled “Quality of Life: Everyone Wants It, But What Is It?” http://alturl.com/ejyv3 there is a statement in the article that I believe sums up one’s Quality of Life “Quality of Life” is subjective and multidimensional, encompassing positive and negative features of life. It’s a dynamic condition that responds to life events”.